Laserfiche WebLink
partnerships with faith communities through "Faith in Action" initiatives. HospiceCare will <br /> provide education and training for faith community volunteers, assistance to faith communities <br /> as they develop bereavement programs, support to clergy and lay ministers as they work with the <br /> terminally ill and education to congregation members regarding hospice as an option for end-of- <br /> life care. <br /> V. The Growing Need <br /> The public's understanding of HospiceCare services has increased in the last five years. A 1996 <br /> survey by the Gallup Organization found that most adults (82 percent) have heard of hospice <br /> care. This data is supported by our own experience. While the primary source of referrals <br /> continues to be from physicians, the fastest growing category comes from individuals outside <br /> health care, including self, family, friends and clergy referrals. This past year HospiceCare <br /> served more than 750 patients awl their families. Yet we know from Dane County statistics on <br /> death that HospiceCare is only serving about 20 percent of the people who may be appropriate <br /> for hospice services. Sadly, this means that many individuals may still be dying in pain, alone, <br /> without management of their symptoms. These individuals include patients whose need for end- <br /> of-life care may require an inpatient facility. <br /> A critical issue exists. HospiceCare is unable to serve patients with certain specific needs <br /> through existing community resources. For two important reasons, HospiceCare must broaden its <br /> services to meet the needs of our community. <br /> First, HospiceCare is receiving an increasing number of requests to provide care to the growing <br /> percentage of patients who either live alone or who have a caregiver with limited ability and to <br /> patients whose caregivers must work outside the home for financial reasons and/or to maintain <br /> insurance benefits. The community has joined us in our efforts to meet this growing need by <br /> significantly increased numbers of volunteers and donations. Considerable time, effort and <br /> resources are expended to arrange help for patients in these specific circumstances but the <br /> existing resources for this type of care are limited, costly, and undesirable for the patient and <br /> family. <br /> Second,there are times when inpatient care is required to meet the needs of patients and their <br /> families. This may include acute pain and symptom management, end-of-life care or respite care <br /> to provide periods of relief to the caregiver. In addition, some patients are unable to access <br /> hospice services now because they need the additional support of a health care facility. Currently, <br /> these types of care are provided by contracting with hospitals and nursing homes in the area. <br /> Providing hospice care through contractual relationships has definite limitations. The family is <br /> no longer the primary caregiver. The philosophy and goal of care within a nursing home or <br /> hospital is not always compatible with the pain and symptom management of the hospice care <br /> team. Surveys of our caregivers indicate that inpatient care in a hospital or nursing home is not <br /> always an ideal or desirable situation for the terminally ill patient. <br />